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A Disability Campaigner, Advocate, Adventurer
Looking for my next
opportunity
to make a change.
The disability way.

This is me

I have a rare condition called Klippel-Feil Syndrome. It creates a fusion in the cervical spine. Depending on the area of fusion, there can be related congenital conditions.
In my case, I was born with a cleft palate, hearing loss, underbite, short neck with webbing (trapezius muscles are extended from the mastoid areas to the shoulders), painless restriction of cervical movement, scoliosis, and kyphosis and a rare aplastic anaemia.
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